We are all so connected these days, with social media accounts and over the internet. It is so easy to connect with people we have in common, including through grief pages and groups on Facebook. But is it helping or hindering our well-being?
Lesley Postle, in association with grief researcher Anna Baglione PhD of Indiana University, looks into online grief support groups to see if they are beneficial and to find out how we can make the most of them in our journey through grief.
If we are lucky, when we lose someone, we get plenty of sympathy and care and compassion. People bring food, send flowers and cards, maybe sit with you a while. But after a short time, it tends to fall off and people go back to their normal lives and forget that you are still coping with your loss. It's often then, we need to find people with whom we can be open and honest, and who will be there for the long haul. Frequently they can be hard to find amongst our own circle of friends and family.
They all have their busy lives and they don't really understand how you feel. It's not their fault, they just haven't been through what you're going through. See also ‘Why Friends and Family Are So Bad At Helping You with Grief’.
Over the years of running this website, one of the things that we hear most often is how comforting it is for people to know that there are others out there who have had similar experiences. If you have lost a child, it can be really healing to find another bereaved parent.
No-one is ever going to have exactly the same experience as you, as we are all unique, but somehow, the closer the story someone has to yours, the easier it is to relate to them and feel less alone with your grief. We can admit things to them that we can't to anyone else. We might feel safer with them to explore our innermost feelings.
This is one of the main reasons why people seek out support groups and bereavement forums, whether face to face or online, or maybe even both.
Support groups can soften our hearts and help us to be more empathetic to others, even those whose experiences do not completely mirror our own. Somehow, there is a recognition between those who have known grief and being with those people who understand can be very restorative. It provides a safe place of belonging.
There are pros and cons to both types of groups and recently, researchers at Indiana University, USA led by Anna N. Baglione have been looking into whether face to face grief support groups or online groups are helpful in the grieving process and whether or not online groups are better or worse than the real life variety.
They found that 66% of participants in online grief support groups found them helpful, as opposed to only 27% of those who took part in face to face grief support groups. We spoke to Anna about the research and the conclusions they reached. Some of their findings are reported in our points below, but Anna’s most important advice at the end of her project was summed up in this comment:
“The type of group (online vs in-person) isn't the most important factor in the grief journey. Rather, finding a group that best enables personal growth, healing, and moving forward is key.”
Anna Baglione
The researchers found that grievers preferred online groups for a variety of reasons:
Like any group, online or off, there can always be issues, especially when emotions are high and people are upset. Unfortunately, grief can sometimes lead people to anger, or frustration and this can result in someone lashing out if they don’t feel that others understand them. Sometimes, it just leads to petty bickering.
Other times an element of competition can creep into grief support groups, when someone feels that their grief is greater than someone else’s.
Another problem can be becoming overwhelmed by the grief of others. Those who have a lot of empathy can get especially overloaded with constant stories of tragedy and loss. Some grievers have reported getting depressed by hearing of new losses every day.
It’s a good idea to keep an eye out for these situations and to withdraw for a while, or seek help elsewhere if you are being sucked into other people’s pain too much.
While the majority of the time, online support groups are a safe place full of kindness and love, problems do arise. If you’re aware and conscious of what is happening, you can steer clear and have a break when things get rough. Try and avoid being drawn into any arguments or conflicts which won’t help your grieving process.
Support groups and bereavement forums vary greatly from thousands of members to just a few. There are many of them, and these days you can find groups for virtually any specific type of loss. There is plenty of choice, and there is bound to be one that suits you. Stick around and read others’ posts for a while to see if you relate to those in the group.
Don’t be afraid to leave and try another group, or try 2 or 3 until you feel comfortable.
Facebook is a good hunting ground for groups. Just do a search for the type of loss you have experienced and see what comes up. These tend to be the most active groups around.
There are also some specialist grief websites with their own forums. Here are two of the best:
Many countries have their own Grief support organisations.
In Australia, we recommend: Griefline which has online support groups and forums.
If you’re ready for one to one counseling, why not try online grief counseling. We explain what it is and how to choose a good counselor here.
Why Friends and Family are So Bad at Helping You with Grief
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Do you feel alone and sad with no support and no idea how to move forward? It can be tough when you are stuck in grief to find the motivation to get the most out of your precious life.
Online counseling can help by giving you that support so you don't feel so alone. You can have someone to talk to anytime you like, a kind and understanding person who will help you to find meaning in life again, to treasure the memories of your loved one without being overwhelmed and to enjoy your activities, family and friends again.
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Try a gentle hypnotherapy track to relax the mind. Learn how self-hypnosis can help you cope with grief at any time of the day or night.
For USA Residents:
Please help our colleagues at Memorial Sloan Kettering Cancer Center, St. Jude Children’s Research Hospital, and Children’s Hospital of Philadelphia, USA by joining in their research study:
Losing a child to cancer is devastating, and there is a critical need to develop effective supports.
A federally-funded study in the United States (US) evaluating different types of support for bereaved parents is currently seeking participants. Parents residing in the US may be eligible if they lost a child diagnosed with cancer at least 6 months ago and live in one of the following states: NY, NJ, PA, CT, FL, or TN (other eligible states are being added, please complete the survey to check with us).
To find out if you may be eligible, please click here, visit our website at bereavedparentsupportstudy.com, or email us at parentstudy@mskcc.org.
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